Conner's story has touched home with me, because he is so close to Azer's age. He has Cystic Fibrosis, and also has Prune Belly Syndrome which basically causes you to have no abdominal muscles, and smaller than normal lungs. That combined with CF has not been easy for Conner.
This past year, Conner's health has declined rapidly. As of just a few weeks ago, his mother has had the painful experience of dealing with hospice, and now she is having to plan for his funeral, as it appears Conner will not have much time left in this world.
This is Conner's blog.
http://notsobrightandshiny.blogspot.com/
Friends of Conner have made this website to help his family pay for the funeral that seems to be coming very quickly. Please consider donating something to help their family. If you have a child with CF, or are affected by CF, you know how expensive the care can be.
http://connerjones.chipin.com/the-conner-jones-fund
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